Wales, United Kingdom

Sign In
Create Account
Bookings
My Account

Signed in as:
filler@godaddy.com
Bookings
My Account
Sign out

Home
About Us
Latest News
Wellbeing
Community Network
Research Exchange
Music Connections
The legal stuff
- Policies and guidance
Contact Us
More

Sign In
Create Account
Bookings
My Account

Signed in as:
filler@godaddy.com
Bookings
My Account
Sign out

Signed in as:

filler@godaddy.com

Home
About Us
Latest News
Wellbeing
Community Network
Research Exchange
Music Connections
The legal stuff
Contact Us

Account

Bookings
My Account
Sign out

Sign In
Bookings
My Account

Rare Disease, Quality of Life, Well-being, Research, Consultancy.

Rare Disease, Quality of Life, Well-being, Research, Consultancy.Rare Disease, Quality of Life, Well-being, Research, Consultancy.

RareQoL research exchange, quality of life,

Research Exchange

RareQoL Research Exchange

Research collaboration - working with researchers in health and social care settings.

We are involved in quality of life research using real world evidence.

We are happy to hear from small charities, support group or health and social care professionals.

working with medics for rare diseased on their red flags survey project

collaboration A case study of the lived experience of women women in wales living with the rare condition eds ( elhers danlos syndrome).

Social Prescribing Research

Presentation and Find a cure Rare disease showcase

Exciting news for 2021. We are planning research to collaborate on social prescribing project

Research exchange for health and social care teams

Top Tips : Planning a Literature Review

.

Quality of life research

The Diagnostic Odyssey

Quality of Life and Social Support

Storytelling for Health

Sondra Butterworth, RareQoL: The diagnostic odyssey, red flags

Storytelling for Health

Quality of Life and Social Support

Storytelling for Health

Sondra Butterworth, rare diseases, storytelling, narrative medicine, rare advocates.

Quality of Life and Social Support

Quality of Life and Social Support

Quality of Life and Social Support

Sondra Butterworth, Quality of Life and Social Support, rare diseases, social prescribing.

Research conferences and networks

European Conference on Rare Diseases & Orphan Products 2020

Quality of Life Research Poster

Sondra Butterworth Director of Research and Social Impact is a PhD student and the University of Chester UK

Manchester rare disease showcase

Sondra Butterworth University of Chester Press Release

RareQoL : Doctoral student joins international panel of experts.

Home
About Us
Latest News
Wellbeing
Community Network
Research Exchange
Music Connections
Policies and guidance
Contact Us

RareQoL Ltd

Tel: 07545 217 050

Company Number 12679015

Registered in England and Wales.

Unit 1 Edison Court Ellice Way,

Wrexham Technology Park, Wrexham,

Wales, LL13 7YT

RareQoL is a registered trademark.