Join our Rare Community Network
Join our Rare Community Network
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FOUNDER
Rare diseases have always had a presence in my life. My sister and brother both have been diagnosed with sarcoidosis and I live with diabetes Beta thalassemia.
DIRECTOR
I have a counselling background I'm qualified in Person Centred Counselling. I have worked for many years in both paid and voluntary roles.
DIRECTOR
I have first-hand experience of living with rare diseases. My diagnosis of Lupus, plus six other rare diseases, has completely changed my life. It has impacted every aspect of my daily living.
DIRECTOR
I was proud to represent Great Britain and Wales in several different Disability Sports, winning Gold Medals at the Invictus and Warrior Games.
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