Join our Rare Community Network
RareQol Founder and Directors
Dr Sondra Butterworth
Joy Pingram
Dr Sondra Butterworth
FOUNDER
Rare diseases have always had a presence in my life. My sister and brother both have been diagnosed with sarcoidosis and I live with diabetes Beta thalassemia.
Tom Butterworth
Joy Pingram
Dr Sondra Butterworth
DIRECTOR
I have a counselling background I'm qualified in Person Centred Counselling. I have worked for many years in both paid and voluntary roles.
Joy Pingram
Joy Pingram
Joy Pingram
DIRECTOR
I have first-hand experience of living with rare diseases. My diagnosis of Lupus, plus six other rare diseases, has completely changed my life. It has impacted every aspect of my daily living.
AJ Pingram
Joy Pingram
Joy Pingram
DIRECTOR
I was proud to represent Great Britain and Wales in several different Disability Sports, winning Gold Medals at the Invictus and Warrior Games.
