Rare diseases have always had a presence in my life. My sister and brother both have been diagnosed with sarcoidosis and I live with diabetes Beta thalassemia.
I have a counselling background I'm qualified in Person Centred Counselling. I have worked for many years in both paid and voluntary roles.
I have first-hand experience of living with rare diseases. My diagnosis of Lupus, plus six other rare diseases, has completely changed my life. It has impacted every aspect of my daily living.
I was proud to represent Great Britain and Wales in several different Disability Sports, winning Gold Medals at the Invictus and Warrior Games.
RCNet Lead Consultant
RareQoL Ltd is a Social Enterprise
Company number 1267901. Registered in England and Wales.
Unit 1 Edison Court Ellice Way, Wrexham Technology Park, Wrexham, Wales, UK LL13 7YT
RareQoL is a Registered Trademark.