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RareQol Founder and Directors

Dr Sondra Butterworth

Joy Pingram

Dr Sondra Butterworth

FOUNDER
Rare diseases have always had a presence in my life. My sister and brother both have been diagnosed with sarcoidosis and I live with diabetes Beta thalassemia.


 

Tom Butterworth

Joy Pingram

Dr Sondra Butterworth

DIRECTOR

I have a counselling background I'm qualified in Person Centred Counselling. I have worked for many years in both paid and voluntary roles. 




Joy Pingram

Joy Pingram

Joy Pingram

DIRECTOR 

 I have first-hand experience of living with rare diseases. My diagnosis of Lupus, plus six other rare diseases, has completely changed my life.  It has impacted every aspect of my daily living. 


AJ Pingram

Joy Pingram

Joy Pingram

DIRECTOR  

I was proud to represent Great Britain and Wales in several different Disability Sports, winning Gold Medals at the Invictus and Warrior Games.



RareQol Project Team

Dr Sondra Butterworth

Dr Sondra Butterworth

Dr Sondra Butterworth

Community Psychologist 

PROFILE

Elizabeth Davenport

Dr Sondra Butterworth

Dr Sondra Butterworth

RCNet Lead Consultant

Profile

Humie Webbe

Dr Sondra Butterworth

Rose Francis

EDI Consultant

PROFILE

Rose Francis

Dr Sondra Butterworth

Rose Francis

Administrator

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Our Partners and Associates

Glenn Webbe

Glenn Webbe

Glenn Webbe

RareQoL Ambassador

PROFILE

Dr Shanali Perera

Glenn Webbe

Glenn Webbe

RareQoL Partner

Profile

Jacky Webbe

Glenn Webbe

Zainib Hussain

RareQoL Partner

PROFILE

Zainib Hussain

Glenn Webbe

Zainib Hussain

RareQoL Volunteer

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RareQoL Ltd is a Social Enterprise

Company number 1267901.  Registered in England and Wales.

Unit 1 Edison Court Ellice Way, Wrexham Technology Park, Wrexham, Wales, UK LL13 7YT 

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