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email: info@rareqol.co.uk

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    • Home
    • About us
    • P.A.C. Network
    • Our Work
      • EDIRA
      • Networks and Projects
      • Rare Community Network
      • RareQoL Learning
      • Research
      • Well-being
    • Resources
      • Video Library
      • Learning Resources
    • Blogs
    • Contact Us

email: info@rareqol.co.uk

  • Home
  • About us
  • P.A.C. Network
  • Our Work
  • Resources
  • Blogs
  • Contact Us

WELCOME : CROESO

Thank you for visiting our website

RareQoL is a not-for-profit social enterprise based in North Wales. Our mission is to improve the Quality of Life for rare disease communities and under-represented groups.


We hope you are interested in our work and

 enjoy looking around our website. 


The RareQoL Team.

RareQoL News

Support from Kaplan Team

    Our Values

    We are a small grassroots social enterprise based in the heart of a rural community. 


    Our values are based on the principles of community psychology, empowerment, inclusion and interactive bio-psycho-social models of care and support.

    Giving a voice to those with Rare Diseases

    Our Work

    Our main areas of work include:


    • Rare Community Network: aimed at rare advocates.
    • EDIRA: We are an Equality Diversity and Inclusive Research Association.
    • Wellbeing: We have received funding from the National Lottery to develop a wellbeing newsletter.
    • RareQoL Learning: We are developing learning resources and welcome students to gain work experience  with us.


    Please get in touch if your would like to collaborate or support us.


    Contact us

    Our work

    Rare Community Network

    Equality Diversity & Inclusive Research Association

    Equality Diversity & Inclusive Research Association

    Our Rare Community Network is made up of small charities, advocates or community groups with limited resources. We meet once a month to share ideas and resources.

    Find out more

    Equality Diversity & Inclusive Research Association

    Equality Diversity & Inclusive Research Association

    Equality Diversity & Inclusive Research Association

    Our EDIRA project is about building an association of experts in Equality Diversity and Inclusive research. We are working with experts in the field to develop a framework for inclusive research.

    Find out more

    Well-being

    RareQoL Learning

    RareQoL Learning

    In 2021 we were successful in our bid for National Lottery funding. Now, we are developing a well-being hub within our RareQoL home in north Wales.

    We are working with local rural community groups to promote well-being activities through a bilingual newsletter.

    Find out more

    RareQoL Learning

    RareQoL Learning

    RareQoL Learning

    Our RareQoL team, associates, and advisors are very knowledgeable in a range of subjects.  With these skills, we are developing online resources for our community. We currently have work placement opportunities for university students.  

    Find out more

    RareQoL Ltd is a Social Enterprise

    Company number 1267901.  Registered in England and Wales.

    Unit 1 Edison Court Ellice Way, Wrexham Technology Park, Wrexham, Wales, UK LL13 7YT 

    • Home
    • About us
    • P.A.C. Network
    • EDIRA
    • Networks and Projects
    • Rare Community Network
    • RareQoL Learning
    • Research
    • Well-being
    • Video Library
    • Learning Resources
    • Blogs
    • Contact Us

    RareQoL is a Registered Trademark.

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