WELCOME to RareQoL: CROESO I RAREQOL

The RareQoL team are delighted that 

Dr Shanali Perera, former Rheumatology Doctor and Sondra have joined forces to develop Podcasts to raise awareness about the psycho-social needs of Rare Disease Communities.

The first Podcast will air on 28th February 2021 in to promote Rare Disease Day.

Sondra had the pleasure of facilitating a round table discussion about social prescribing and the Rare Disease Community.

the session was part of the Rare Disease Showcase run by the charity Find a Cure.

RareQoL have partnered with  Fair Treatment of the Women of Wales. We will be sharing knowledge and resources to raise awareness about rare diseases in Wales.

The RareQoL team are delighted that our Founder has been invited to join the MEDICS 4 RARE DISEASES team as a research consultant to assist with the analysis of their Red Flags Project. 

The results are due February 2021 in time for Rare Disease Day.

 RareQoL were featured in Good News Cymru.

The article gave details of the support the RareQoL had received from Social Business Wales to set up our social Enterprise.   

Professor Meena Upadhyaya OBE is mentoring  Sondra Butterworth on the 

WALES ROUTES TO PUBLIC LIFE MENTORING SCHEME.   
On the All Wales BAME Mentoring Scheme  with support of Professor Meena Upadhyaya OBE hopes to continue to  raise awareness about rare diseases in Wales.