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WELCOME to RareQoL: CROESO I RAREQOL

Rare Community Network, BAME groups, social prescribing Canolfan Llesiant: Wellbeing Centre

Thank you for visiting our website.

RareQoL is a nonprofit Social Enterprise based in north Wales, with a mission to improve  Quality of Life for our communities.


We are a passionate and diverse group of Advocates, supporting  the Rare Disease Community and

under-represented groups through building networks, rare disease research and consultancy.



Our principles

Practice and Values

Our practice is based on the core values of Community Psychology. 


This includes respect for equality and diversity, empowerment, participation, supporting communities through social justice and understanding. 


All communities want a good Quality of Life, our mission is to help communities o  achieve this by working in partnership, promoting engagement and collaboration.

Our Diverse Community

We have an  Equality Diversity and Inclusion  Policy which has been written following the guidance set out in The Equality Act (2010). This guides our  in our practice when supporting our community. 

The Equality Act states that we cannot discriminate against people who share protected characteristics. 


We support Rare Disease Community and Under-represented groups. Our aim is to improve Quality of  Life for all the communities we serve.

edira - A NEW PROJECT FROM RAREQOL

Equality diversity inclusive research association

Equality diversity inclusive research association

Equality diversity inclusive research association

humie webbe joins rareqol and our edi Consultant

Equality diversity inclusive research association

Equality diversity inclusive research association

  

Humie Webbe

Humie has had 30 years experience of working in the public and voluntary sector, Humie is award-winning Equality, Diversity and Inclusion practitioner specialising in managing projects requiring high-level stakeholder engagement. Humie has an MBA in Project Management and BA Hons in Community Education. Former roles include Operational Manager for the Cardiff Communities First Programme and National Diversity                              Co-ordinator for the mental health anti-stigma campaign, Time to Change Wales.

About Humie

Background

  

Humie’s former advisory roles include the Arts Council Wales, Creative and Cultural Skills and the Black, Asian and minority ethnic (BAME) Covid-19 Socio-economic Advisory Sub-group. Established by the Welsh First Minister Mark Drakeford, the group produced the seminal report in 2020 identifying the socioeconomic factors influencing the adverse Covid-19 health and social care outcomes for individuals from minority ethnic backgrounds. 


Public appointments

Humie is Co-Chair of the Learning Disability Ministerial Advisory Group (LDMAG) and. Bringing together parents, carers, health and social care practitioners, the group advises the Welsh Government on improving the lives of people with learning disabilities. As a working carer, Humie contributes to research and policies to improve services and outcomes for individuals with learning disabilities from ethnic minority backgrounds



EMPLOYMENT

Humie is employed with National Training Federation for Wales (NTfW) as the Work-Based Learning (WBL) Strategic Equality and Diversity Lead. Humie works with work-based learning providers and the Welsh Government to develop strategies to increase the participation of underrepresented groups onto apprenticeships, particularly disabled people and individuals from Black, Asian and minority ethnic backgrounds. Humie is in the 2018 Western Mail list of top 100 brilliant African Caribbean and African Welsh people who have helped shape Wales. In 2019 she received an Ethnic Welsh Women’s Association Award (EMWWAA) for Social and Humanitarian work. In their 2021 publication ‘Seventy Years of Struggle and Achievement’, she features as one of the inspiring stories from ethnic minority women in Wales.   .

Whose Voice is it anyway?

Subscribe

To find out more about our #whoseVOICE campaign sign up here.

Our practice is based on 3 main areas of work

Community based research

Community based research

Community based research

RareQoL Research for our Rare Community Network. #WHOSE VOICE?

We are involved in Quality of Life research with health and social care organisations 

Our Research Exchange Page

Well-being

Community based research

Community based research

RareQoL Well-being for our Rare Community Network, BAME groups and our under-represented communities

 We promote wellbeing activities to enable our communities to improve their quality of life. 

Our Well-being page

Rare Community Network

Community based research

Rare Community Network

Rare Community Network. Whose voice is it any way? #WHOSE VOICE?

Bringing community groups together  for shared learning and project collaborations. 

Our Community Network Page

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Sign up to hear from us about our activites.

rareqol projects and activities

oCtober 2021 New members welcome

september 2021 RareQoL podcast for 2021

oCtober 2021 New members welcome

oCtober 2021 black history month

september 2021 RareQoL podcast for 2021

oCtober 2021 New members welcome

september 2021 RareQoL podcast for 2021

september 2021 RareQoL podcast for 2021

september 2021 RareQoL podcast for 2021

DECEMBER202: RareQoL podcast

October: new Rareqol partnership with FTWW

september 2021 RareQoL podcast for 2021

RareQoL Podcast with Dr Shanili Perera ad Sondra Butterworth. #WHOSE VOICE. BAME, Social Prescribing

The RareQoL team are delighted that 

Dr Shanali Perera, former Rheumatology Doctor and Sondra have joined forces to develop Podcasts to raise awareness about the psycho-social needs of Rare Disease Communities.


The first Podcast will air on 28th February 2021 in to promote Rare Disease Day.

November: Find a cure rare showcase

October: new Rareqol partnership with FTWW

October: new Rareqol partnership with FTWW

Sondra had the pleasure of facilitating a round table discussion about social prescribing and the Rare Disease Community.

the session was part of the Rare Disease Showcase run by the charity Find a Cure.

October: new Rareqol partnership with FTWW

October: new Rareqol partnership with FTWW

October: new Rareqol partnership with FTWW

RareQoL Partnership with Fair Treatment for the Women of Wales. #WHOSE VOICE? FTWW

RareQoL have partnered with  Fair Treatment of the Women of Wales. We will be sharing knowledge and resources to raise awareness about rare diseases in Wales.

September: research with m4rd

september: PROFESSOR MEENA UPADHYAYA OBE

September: RareQoL featured in Good News CYMRU

RareQoL Red flags research with M4RD. Rare Community Network. #WHOSE VOICE?

The RareQoL team are delighted that our Founder has been invited to join the MEDICS 4 RARE DISEASES team as a research consultant to assist with the analysis of their Red Flags Project. 

The results are due February 2021 in time for Rare Disease Day.

September: RareQoL featured in Good News CYMRU

september: PROFESSOR MEENA UPADHYAYA OBE

September: RareQoL featured in Good News CYMRU

RareQoL featured in Good New Cymru. BAME Wales. Rare Community Network. #WHOSE VOICE?

 RareQoL were featured in Good News Cymru.

The article gave details of the support the RareQoL had received from Social Business Wales to set up our social Enterprise.   

september: PROFESSOR MEENA UPADHYAYA OBE

september: PROFESSOR MEENA UPADHYAYA OBE

september: PROFESSOR MEENA UPADHYAYA OBE

Professor Meena Upadhyaya OBE mentors Sondra Butterworth. BAME, EYST, Wales. #WHOSE VOICE?

Professor Meena Upadhyaya OBE is mentoring  Sondra Butterworth on the 

WALES ROUTES TO PUBLIC LIFE MENTORING SCHEME.   
On the All Wales BAME Mentoring Scheme  with support of Professor Meena Upadhyaya OBE hopes to continue to  raise awareness about rare diseases in Wales.  

Collaborations

We would love to hear from you.

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RareQoL

Capel Hermon Business Centre Llandrillo Corwen United Kingdom LL21 0ST.

info@rareqol.co.uk

Hours

Open today

09:00 – 17:00

Thank you for your message. One of our RareQoL team will contact you.

Best wishes

Our Supporters and Advisors

  • The national body for social enterprise. Social enterprises are businesses with a social mission.
  • Helping to strengthen and empower Welsh communities by supporting the growth of social enterprises.
  • The biggest network of social enterprises in the UK.
  • A registered charity driving an attitude change towards rare diseases amongst medical students.
  • The national body for social enterprise. Social enterprises are businesses with a social mission.
  • Helping to strengthen and empower Welsh communities by supporting the growth of social enterprises.
  • The biggest network of social enterprises in the UK.

Privacy Policy and disclaimer

GENERAL DATA PROTECTION REGULATIONS

RareQoL Ltd  is compliant with GDPR (General Data Protection Regulations).  GDPR 

Your privacy is important to us, consequently, we will not share your data with any third party organisations.


DISCLAIMER

RareQoL Ltd  aim to ensure that all information we provide is as accurate and up-to date as possible.  The information contained on  this website is generic in nature, and  we do not  offer specific advice via this means. 


We do not provide medical, legal, social care, educational or specific  financial advice. The information we provide is for guidance only.  


Please see the professional  responsible for your care and support , a health or social services representative, or your GP if you have specific needs which require attention. 


Best wishes

The RareQoL Team

      Company 12679015  Number 

Registered in England and Wales.

Unit 1 Edison Court Ellice Way, 

Wrexham Technology Park, 

 Wrexham, Wales, LL13 7YT 

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RareQoL is a registered trademark.

Student Placements

We are delighted to announce that we will be mentoring students as they support us in our work.


 

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